Showing posts with label hospice. Show all posts
Showing posts with label hospice. Show all posts

Monday, May 25, 2015

What I've Learned in the Last Five Months

One hundred thirty eight days ago my dad’s heart doctors told him and my mom that there was nothing more they could do for him and encouraged my parents to contact hospice. Thirteen days ago my dad died from congestive heart failure. It’s been a difficult five months. But I’ve learned some things during these months; things that I want to remember.

Death can be a gradual process. I’m thankful that my dad felt well enough to move around the house and enjoy visits from family and friends for much of the time. When we first contacted Hospice, dad was fairly strong and felt pretty good. As time went on, however, he gradually had more difficulty keeping his balance and began using a cane, and then a walker to help him get around. It was hard to see my father, once so strong, now walking slowly and unsteady.

Just when you think you have things figured out, they change. As my dad needed more help, we’d adjust his care. The cane and walker helped him get around. Then he got a different recliner chair with a remote control that helped him get up. During the last month he struggled with monitoring his medications and became more confused and disoriented. Just as we’d adjust to each new “stage,” something else would change. Thankfully the Hospice staff (Spectrum Hospice) guided us through each of these changes.

Things can change quickly. I talked with my dad on the phone the Wednesday before he died and he sounded fine. I asked if he wanted me to pick up a Mother’s Day card for him to give my mom the following Sunday. He said yes and also asked me to get a bouquet of flowers to give her. Two days later his health declined dramatically; by Saturday we had a hospital bed brought in and were told to begin administering special medication every two hours to keep him comfortable as he was now in the end stage.

You don’t know when it’s the last time you’ll … As he drifted in and out of consciousness that last weekend, I remember brief bits of conversation. He made a joke about the oxygen he was breathing, he was confused and kept asking when my friends were coming over, he wanted to sit up but wasn’t strong enough so I had him lean against me for a while, I told him I loved him and he said he loved me too. But I didn’t realize when I left for school Monday morning that I would never hear him talk to me again.

Death is not always pretty, holy, or sacred. From Monday afternoon to late Tuesday morning, the sounds of my dad gasping for breath were painful to watch and listen to. Although he was not in pain because of the morphine, it was very hard for us. It was not pretty or holy; it was horrible. The death rattle and its effects were evident. 

The heart continues to do its best for as long as it can. My dad’s breathing became shallow, quiet breaths for the last 10-12 hours of his life. As I sat next to him during his last hour, I counted the seconds between breaths. It was a constant 3 seconds, then a breath, 3 seconds, then another breath. I was amazed at the way this damaged, tired heart, which had struggled for so long was still continuing to work. Then there was a 9 second space, followed by a breath, 3 seconds, and then more irregular breathing. As my mom, my sister, and I stood around my dad’s bed, he slowly stopped breathing, just like a clock slowly winding down.

I wonder about the mystery of the transition from this life to heaven. As my dad stopped breathing I wondered what spiritual happenings were occurring that we couldn’t see. Was an angel in the room with us? Did my dad see us as he went to heaven? I have so many questions without answers.

I’m thankful for God’s gift of family. I am so glad that my mom, my sister, and I were with my dad when he died and could spend the next several days together, making arrangements. I’m thankful for the weekend our family had together: my brother-in-law, nephews, niece, and my brother (unfortunately his wife had to stay in Russia and couldn’t make the trip).

God provides. After a long day making funeral arrangements, we were just tired and had no idea what to do for supper. I said aloud, “I wish someone would just come to the door with supper for us.” Less than 30 seconds later the doorbell rang – a neighbor was there with supper for us! (Wow, God!) The next day I mentioned how nice it would be to have some brownies; within ten minutes another neighbor knocked at the door with supper and dessert! My sister and I needed appropriate funeral clothes and God led us to the right stores very quickly (and they were on sale too).

The Christian community is so important. The prayers, cards, notes, Facebook comments, and people who attended the visitation and memorial service have encouraged and uplifted my family. It is a reminder to me to also show this support to others.

You can praise God in the midst of grief. We did just that at my dad’s memorial service! And it felt good and right.


Knowing death is coming may make it easier, but it’s still not easy. We realized one hundred thirty eight days ago that my dad would most likely die within the next six months. I had the time to tell him I love him. I’m glad I was able to spend time with him and help care for him. I have no regrets. I’m happy that my dad is now free of pain and the heavy batteries that helped his heart. I’m glad he’s enjoying his new life in heaven with Jesus our Savior. But I’m sad at the same time. Grief is still grief. I miss him. I love you dad. And I’ll see you again someday.

Saturday, February 7, 2015

The Power of a Word


There are some words that have powerful connotations when you hear them. Words like 

freedom, 

compassion, 

slavery, 

racism, 

compassion, 

religion,

life,

death. 

Some words are filled with positive meanings, while others bring to mind negative images. And some words offer a mixture of both happy and sad connotations.

My family began living with a powerful word last month. The word is hospice. On January 7, my dad's heart doctor told my parents there was nothing more they could do to help him and advised them to contact a hospice organization. After researching several, we met and signed on with Faith Hospice and have been adjusting to this new reality. 

This single word has brought out a number of conflicting emotions and feelings in my mind.

Defeat - Although we knew the LVAD wasn't completely successful, the doctors have always been positive and offered hope. Hearing them say say there are no more options is hard.

Anger and Frustration - The past year and a half have been difficult, especially for my parents. The hope that the LVAD would lead to a better quality of life was never realized and this frustrates me.

Fear - The fact that my dad will die and coming to terms with what that means.

Gratefulness - My dad is still feeling fairly well, although he is pretty much home-bound. We signed on with Hospice early instead of waiting until his health is in a crisis, so that we would be familiar with the program and staff and have time to adjust.

Confidence and Trust - We've heard only positive things about Faith Hospice. I love the philosophy behind it and have supported my local Hospice organization in Holland for years. Everyone we've met has been kind and helpful. They've taken a little of the stress of caring for my dad off my mom. 

Worry - Every day I wake up and worry that my dad will die today. Every time I call my parents I wonder how they are doing. I find I am often worried about them.

Surrender - I'm finding that I need to constantly remind myself that I am not in control of this situation. One of the first things I did after hearing the news was prepare a week of "emergency sub plans" for when the crisis mode would begin. I find myself wondering if my dad will die this month or next month or in six months or ... The truth is, I don't know when. No one knows for sure. Just like I don't know when I (or anyone else) will die. It's in God's hands. I need to surrender and simply live each day.

Hope and Faith - As I've been thinking about the reality of death this past month, certain Bible passages have become more real to me. The promise that those who love God and trust Jesus as their Savior will live with God forever gives me hope. The assurance that we will be reunited with loved ones is comforting.


It's funny how one little word can both offer encouragement and make you feel sick to your stomach. Hospice - it's an important word. I wish we didn't have to know it personally in our family, but I'm also grateful that it's available. And I will continue to process all that it means in the next days and months.